Photo Gallery

Rachel, post tracheobronchoplasty surgery.Rachel on a "good" day.Rachel's during her professional ballet career.Rachel and Steven (before she became ill).From the top Airway Specialist in Boston (and one of the best in the world).Post tracheobronchoplasty bronchoscopy. Because the mesh was not integrating into the trachealis muscle as it should, they placed a metal stent (usually not used for something like this) to try press the trachealis into the mesh as it would heal. I was on multiple mucus reduction agesnt at the time, as well.Post tracheobronchoplasty bronchoscopy. Because the mesh was not integrating into the trachealis muscle as it should, they placed a metal stent (usually not used for something like this) to try press the trachealis into the mesh as it would heal. I was on multiple mucus reduction agesnt at the time, as well.Post tracheobronchoplasty bronchoscopy. Because the mesh was not integrating into the trachealis muscle as it should, they placed a metal stent (usually not used for something like this) to try press the trachealis into the mesh as it would heal. I was on multiple mucus reduction agesnt at the time, as well.Post tracheobronchoplasty bronchoscopy. Because the mesh was not integrating into the trachealis muscle as it should, they placed a metal stent (usually not used for something like this) to try press the trachealis into the mesh as it would heal. I was on multiple mucus reduction agesnt at the time, as well.Rachel & Siena at the hospital.Rachel in another breathing mask.LP Shunt surgical scar.Surgical trial of two different catheter types. Rachel proved to be sensitive to one type and rejected it causing one of her first shunts to fail. This test, allowed a small piece of two types to be implanted for a time to see if there was any reaction. That way the Neurosurgeon would know what catheter he could safely use. You don't want any extra complications in brain surgery. ;)All Bruised up. They just can't seem to keep IVs on Rachel. They "blow out" extremely quickly. This is why they finally switched to PICC Lines and finally installed a Power Port.They finally implanted a chest port for Rachel as her veins weren't holding up ot IVs and she was having too many PICC lines. This is the scar.SienaEnjoying the view.Siena leading the way, always making sure Mom is safe.Siena has to go everywhere.Siena, at the hospital with Mom.Siena, at the hospital with Mom.Siena, at the hospital with Mom.Siena, at the hospital with Mom.Siena, at the hospital with Mom.Siena, at the hospital with Mom.Siena, at the hospital with Mom.Siena, at the hospital with Mom.Siena, at the hospital with Mom.Siena, at the hospital with Mom.Siena, at the hospital with Mom.Siena, at the hospital with Mom.Siena showing her Mom some sympathy at the hospital.At a restaurant, after a long day of car travel, waiting for Mom & Dad to finish dinner. Tired doggie.Siena sit-standing in the car!Siena loving the hotel bed.Siean chilling at one more hotel waiting for Mom & Dad to finish packing up before another long day of driving.Siena chilling out at another hotel after a long day of driving.Siena settling in at yet another hotel.SienaSiena at the symphony. Rachel's pulmonoligist heads up a regional orchestra and gives tickes to Steven and Rachel to see their yearly performance. Siena loves "the theater".Siena, after opening her Christmas presents.Never "off-duty" but relaxing on the sofa - while still keeping a watchful eye on Mom.Siena, taking a quick break while out at work.SienaRachel with SienaSiena at the hospital, trying to make Mom smile.More hospital time.In the hospital again.And back in the hospital, yet again.Another hospital stay.They just can't seem to keep IVs on Rachel. They "blow out" extremely quickly. This is why they finally switched to PICC Lines and finally installed a Power Port.Another breathing mask to wear.At the hospital, again.Rachel and her MemawSteven and RachelRachel in "Snow Pas de Deux", from Nutcracker.Rachel in "Snow Pas de Deux", from Nutcracker.Rachel (right) backstage before a performance.Rachel in rehearsal.Rachel in rehearsal.Rachel in rehearsal.Rachel in rehearsal.Rachel before a performance of Equinoxe (Jean Michel Jarre).Rachel before a performance of Equinoxe (Jean Michel Jarre).Rachel, in Nutcracker.Rachel, in Nutcracker.Rachel, in Nutcracker.Cast of Giselle (Rachel on shoulders).Rachel, in Giselle.Rachel, in Giselle.Rachel, in Giselle.Rachel, in Giselle.Rachel, after a world premiere of "Blood of Seyavash".Rachel (center) and full cast of world premiere, "Blood of Seyavash".Rachel in a performance of "Can-Can"Rachel after a performance of "Cinderella".Rachel (right) after a performance of "Cinderella".Rachel, approx age 18.Rachel warming up for class or rehearsals at the Royal Academy.Rachel getting ready for class or rehearsals at the Royal Academy.Rachel (center), in RussiaRachel, age 13 or 14.Rachel in specialized physiotherapy for an injury (recurrent dislocated sacrum, now we realize it was related to EDS, but we didn't have the diagnosis, at the time).Rachel in special "body conditioning" physical therapy for an injury (now we realize it was related to EDS, but we didn't have the diagnosis, at the time).Rachel in special "body conditioning" physical therapy for an injury (now we realize it was related to EDS, but we didn't have the diagnosis, at the time).Rachel, age 11.Rachel, about age 10.Rachel, age 9 or 10.Rachel, about age 9.Rachel, age 9.Rachel, training hard in ballet class. Around age 10.Rachel with the, then, Govenor of Alabama.Rachel (far left) in a community "Lecture Demonstration" performance.Rachel (left) after a community performance.Rachel, about age 10.Rachel, about age 10.Rachel, about age 10.Rachel's first ballet "solo" costume.Rachel in her first ballet "solo".Rachel (center) about age 7.Rachel in her first dance costume.Rachel (about age 4).Rachel (age 2 or 3).